Patient Education Manager, Rare Hematology and Nephrology, NY Metro (NJ, NYC Metro Area, and Delaware)

This role is responsible for engaging the patient community, conducting patient education programs, partnering with advocacy groups, and supporting infusion sites of care as the subject matter expert for REMS requirements as well as product and disease education.

The Patient Education Manager will provide patients and caregivers disease state and product education, an overview on Alexion’s OneSource Programs throughout the patient journey. They will interact with patients/caregivers, nurses, pharmacists, ancillary staff, physicians, and advocacy/support groups to prevent and address non-clinical barriers to patient education and onboarding.

Key responsibilities include:

• Creating and managing regional patient engagement plans including patient educational events, community engagements, and face-to-face patient interactions
• Delivering in-depth disease state and product education to inform and empower patients/caregivers as they navigate their rare disease journey
• Developing and executing comprehensive patient programming strategies that prioritize patient needs
• Sharing materials on the disease, diagnosis, and treatment support with patients as needed
• Educating prescribed patients and their caregivers regarding how to prepare for and what to expect during the infusion process for Alexion products, in accordance with product label utilizing Alexion approved resources
• Capturing and reporting local business insights to enhance strategic plans and improve patient experience
• Setting up and participating in events and educational initiatives for patients and caregivers on behalf of Alexion per approved policy
• Building the rare disease network/relationships through local advocacy groups, rare disease related events, and attending patient events
• Partnering with Alexion Patient Advocacy Team to drive engagement and partnership

Health Care Org Site of Care Education (including infusion sites) & REMS Support (60%):

• Executing field visits at infusion centers and focused HCOs to provide in-depth education and training on dosing and administration of Alexion products, disease state, and REMS requirements/procedures, and provide ongoing support
• Supporting ongoing REMS certifications of infusion sites of care
• Collaborating with non-prescribing health care staff at infusion sites to ensure understanding and compliance with REMS components, including importance of vaccination data and following REMS processes
• Maintaining accurate and detailed records of field activities, including interactions with non-prescribing healthcare providers and sites of care, to ensure compliance with regulatory standards

Requirements:

• Minimum of 5 years total business experience in the healthcare or biotech industry
• BA/BS Degree is required; a nursing, allied health, healthcare administration or rare disease support background is desired (advanced degree a plus)
• Previous experience with IV infused products
• Ability to travel up to 60-80% within a territory is required; ability to travel to meetings/trainings/programs as necessary which may include evenings and weekends
• Excellent presentation skills to diverse stakeholders in varied settings that may include up to 150+ people
• Ability to work independently and manage time effectively to prioritize field activities
• Excellent communication and interpersonal skills, with the ability to effectively engage with healthcare professionals and patients
• High initiative, solid work ethic, and consistent accountability
• Demonstrated success working within cross-functional teams, including the ability to collaborate across functions in a field-based role
• Valid driver's license and clean driving record

Preferred qualifications include:

• At least 3 years field-based experience in account management, sales, or patient education preferred
• Must be familiar with the relevant legal and regulatory components of the pharmaceutical and biotech industry, rare disease experience a plus
• Certification or training in REMS
• Strong understanding of REMS requirements and pharmaceutical regulations
• Demonstrated success working within cross-functional teams, including the ability to collaborate across functions in a field-based role
• Bi-lingual proficiency in Spanish language, both written and spoken
• Understanding of rare disease advocacy landscape
• Experience educating and supporting patients/caregivers
• Strong organizational skills and ability to adapt to change and react constructively in a high-energy and fast-paced environment
• Demonstrates initiative, teamwork, and accountability