Patient Education Manager, Rare Hematology and Nephrology, Southwest (Arizona, Northern California, Nevada, New Mexico, Oregon, Texas, Utah)

This role is for a Patient Education Manager who will engage the patient community, conduct patient education programs, partner with advocacy groups, and support infusion sites of care as the subject matter expert for REMS requirements as well as product and disease education.

The Patient Education Manager will provide patients and caregivers disease state and product education, an overview on Alexion’s OneSource Programs throughout the patient journey. They will interact with patients/caregivers, nurses, pharmacists, ancillary staff, physicians, and advocacy/support groups to prevent and address non-clinical barriers to patient education and onboarding.

Key responsibilities include:

• Creating and managing regional patient engagement plans including patient educational events, community engagements, and face-to-face patient interactions
• Delivering in-depth disease state and product education to inform and empower patients/caregivers as they navigate their rare disease journey
• Developing and executing comprehensive patient programming strategies that prioritize patient needs
• Sharing materials on the disease, diagnosis, and treatment support with patients as needed
• Educating prescribed patients and their caregivers regarding how to prepare for and what to expect during the infusion process for Alexion products, in accordance with product label utilizing Alexion approved resources
• Capturing and reporting local business insights to enhance strategic plans and improve patient experience
• Setting up and participating in events and educational initiatives for patients and caregivers on behalf of Alexion per approved policy
• Building the rare disease network/relationships through local advocacy groups, rare disease related events, and attending patient events
• Partnering with Alexion Patient Advocacy Team to drive engagement and partnership
• Proactively seeking opportunities to improve processes and outcomes, embracing change and innovation to enhance patient support and results
• Collaborating effectively, building and maintaining strong relationships with cross-functional team (i.e. Commercial, Medical, Marketing, and Patient Services) to ensure alignment of patient education initiatives with overall business strategies, driving optimal patient outcomes

• Executing field visits at infusion centers and focused HCOs to provide in-depth education and training on dosing and administration of Alexion products, disease state, and REMS requirements/procedures, and provide ongoing support
• Supporting ongoing REMS certifications of infusion sites of care
• Collaborating with non-prescribing health care staff at infusion sites to ensure understanding and compliance with REMS components, including importance of vaccination data and following REMS processes
• Maintaining accurate and detailed records of field activities, including interactions with non-prescribing healthcare providers and sites of care, to ensure compliance with regulatory standards
• Supporting execution of ongoing compliance tactics related to all active REMS
• Supporting successful implementation of any new REMS or REMS enhancements
• Partnering with Commercial REMS team to devise strategies to support REMS
• Partnering with Commercial colleagues to ensure account engagement strategy is pulled through successfully via aligned tactics

• Developing and facilitating relationships with infusion nurses and other staff to support patients
• Setting up and engaging in non-prescriber congresses and educational events on behalf of Alexion per approved policy
• Partnering and collaborating compliantly with other Alexion field teams on patient and HCP office education